Eosinophilic & Rare Disease Cooperative Joins ASAP 340B

The Alliance to Save America’s 340B Program (ASAP 340B) is pleased to welcome the Eosinophilic & Rare Disease Cooperative (ERDC) as the latest addition to its growing coalition of more than 40 partners committed to strengthening and protecting the 340B program.

ASAP 340B and its partners are united around a core principle: a more transparent and accountable 340B program is essential to ensuring that vulnerable patients — including those living with rare diseases — can access the affordable, specialized care they depend on.

ERDC brings critical patient and caregiver perspectives to the forefront of 340B reform advocacy. Their firsthand experience underscores how a well‑functioning, transparent 340B program can help sustain access to life‑saving therapies, support care coordination, and reduce financial toxicity for families navigating rare conditions.

“For the rare disease community, the stakes are especially high,” said Sarah Jones, of ERDC. “Patients face extraordinarily high treatment costs, limited therapeutic options, and too few specialized providers. Without clear tracking and patient‑focused use of 340B savings, rare disease patients risk falling through the cracks. Greater transparency ensures the program’s benefits reach those it was originally designed to serve — patients with complex, lifelong conditions who rely on safety‑net providers for access to care.”

This partnership reflects a shared belief that reforming 340B — through greater transparency, accountability, and patient‑focused oversight — will strengthen the program for the long term. By ensuring that savings are used to directly benefit patients, particularly those with rare and serious diseases, 340B can more effectively support safety‑net providers while honoring its original mission.

ERDC’s expertise in navigating the unique challenges of rare disease care will be a valuable asset to ASAP 340B’s ongoing advocacy efforts, helping ensure that reform conversations fully reflect the needs of patients who depend on the program most.

Learn more about ASAP 340B's new partner below.

About the Eosinophilic & Rare Disease Cooperative (ERDC)

ERDC is a patient- and care partner–led organization that helps people living with rare diseases navigate a healthcare system that was never built for them. We work at the intersection of clinical care, medication access, policy, and community — because we've lived the reality that a diagnosis alone doesn't tell you how to get help. Our community deserves more than awareness — we provide the tools to make real access to care possible.

Learn more at eosinophilraredisease.org.